Delays and more waiting

Unfortunately we did not have our first appointment at Sick Kids yesterday as Zeke developed an upper respiratory infection. The team let us know that it would be dangerous to try and put Zeke under anesthesia with compromised lungs. And so we wait until October 16 with the hopes that he is well enough for them to do their preop testing which involves a cath, MRI, an echo and ECG. All of these tests need to be done before the actual heart surgery and they involve him being put under. Ben and I knew when he started to get sick that this was going to be the likely outcome, waiting for him to get better before anything can be done. It’s in the waiting where the anxiety and worry grows because with every day his collateral veins are increasing and the bulging becoming more prominent and as his cardiologist Dr Mills noted this past Thursday at our appointment the pressures in his heart are increasing.

It’s easy for the anxiety and worry to consume our thoughts and some days are better than others at keeping the worrying at bay. What has become very clear to us is this, we control nothing and in the waiting praying has become what sustains us. We trust God’s timing with Ezekiel, that He knows Zeke needs this heart surgery and relief from the many symptoms he is experiencing. I had the amazing women at our church love on us with an evening of prayer as we were initially preparing to leave and they all wrote cards of encouragement and scriptures for us to read and hold onto in this next season. One of those verses has been resonating this morning as I type this:

Psalm 56:3-4 “When I am afraid, I put my trust in you. In God, whose word I praise, in God I trust; I shall not be afraid. What can flesh do to me (or my children)?”

This is our prayer request as we wait for me to fly out October 15th, that Zeke would recover from this infection and would not catch another infection; that we would have a room available for us at Ronald McDonald house for October 15th, and for us to continue to trust God with with all of the logistics and financial provisions. Once again thank you saints for standing in prayer with us.

Psalm 55:22 “Cast your burden on the Lord and he will sustain you; he will never permit the righteous to be moved.”